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Lanchester Beer Festival

Lanchester Beer Festival

Tickets £7

Lanchester Cricket Club, Durham

Come along for a great day out with live entertainment from the Smokin’ Spitfires

Tickets available in advance through The Bubble Foundation, email bubblefoundation@nuth.nhs.uk

 

 

#wearyellowforseth

Seth is a 5 year old patient, with a severe combined immune deficiency, on the bone marrow transplant unit here in Newcastle upon Tyne.  His request for support has gone global and you can follow his story on Facebook, Twitter and through his parents blog.

Thank you for your all your kind words and support!

Our little hero

#wearyellowforseth

@ourlittleheroseth

 

 

Catch up on the story

If you’ve been anywhere near a computer, smartphone or tablet over the past week or so, the

chances are you’ve already heard about the #wearyellowforseth campaign.

With coverage on news outlets as diverse and far-reaching as ABC, CBS, the Daily Mail and

BuzzFeed, But for those of you not in the know, or for those who simply want to learn more about

this inspirational trend and the story behind it, we’ve compiled the story of this extraordinarily brave

little boy, and the charity he has brought so much attention to.

 

Who is Seth?

Seth Lane, from Northamptonshire, is a 5 year old patient in the Great North Children’s Hospital in

Newcastle. Born with a very rare genetic disorder, known as Severe Combined Immunodeficiency

(known as SCID, or ‘bubble baby disease’ for short), Seth has no immune system, which means that

he has spent most of his young life living inside a specially sterilised room so as to avoid any

potential infection because he doesn’t have enough white blood cells to fight them off. This makes so

many simple things, like giving him a cuddle or playing a game with him very difficult indeed.

In fact, before anyone can even enter his room, even Mum and Dad, they have to scrub their hands

and wear special plastic gowns to stop the spread of germs. So if his parents, or any of the nurses

who take care of Seth everyday have a cold, they can’t enter.

 

How did #wearyellowforseth come about?

The idea for the #wearyellowforseth video came about around the time it was revealed that Seth

would need a second bone marrow transplant to stand a chance of survival.

As Seth’s Mum Leanne writes, ‘4 and a half years ago, as Seth was approaching his first bone

marrow transplant, an old friend of mine was also battling leukaemia. She was a big supporter of

Seth and spoke to me about the significance of the colour yellow in relation to immunity. Apparently

it signifies a strong immune system. So we had the idea to ask people to wear yellow to show

support on his transplant day. We were astounded to see so many friends, family members and

colleagues post pictures of them wearing yellow! It was amazing for us as his parents to see

people were thinking of our baby!’.

 

So when Leanne and Seth’s Dad Nik were told that the first transplant hadn’t worked, they decided

to try this again and get as many of their family and friends as possible to wear yellow both in

support of Seth and because, funnily enough, his favourite colour had become yellow!

Nik filmed Seth holding up cards from his bed in hospital explaining what he had been through and

asking people to join in to show their support, and from there it spread much wider than either

Leanne or Nik could have possibly imagined.

 

How many people have shown their support for Seth?

The short answer is: loads!

The response to Seth’s video has been, to put it mildly, incredible!

With over 20 million views worldwide, and a number of news outlets around the world showing

Seth’s video, #wearyellowforseth has become a worldwide phenomenon, and has helped to shed

some light on the struggle faced by families affected by SCID.

 

The Bubble Foundation

But although it’s incredibly encouraging to see such a strong show of support from around the

globe for an incredibly brave little boy, it’s important to remember that, whilst extremely rare, SCID

is a condition which affects many other young children, many of whom will die before their first

birthday without proper treatment.

In fact, through the efforts of The Bubble Foundation, who provide care for children born with

immune deficiencies as well as conducting research into SCID and new ways to treat it, the

survival rates of those diagnosed with SCID have risen from 50% to 80% in 2012.

But if all of this good work is to continue, it is vital that the foundation continues to receive funding

to be able to both provide the care and the technology which is so desperately needed for those

born with SCID.

 

So what can you do to help?

Fortunately there are a number of things you can do to help support Seth and the charity that helps

to care for him.

You can show Seth that he’s in your thoughts by wearing yellow this Friday 27th March and posting

your pictures on Facebook, Twitter and Instagram (or all three!) using the hashtag

#wearyellowforseth.

And if you want to donate to The Bubble Foundation to help the staff at the Great North Children’s

Hospital take care of Seth and others like him, as well as fund research into SCID, you can either

visit their JustGiving page, or text your donations by sending SETH 05 followed by the amount you

would like to donate to 70070.

 

You can follow Seth’s progress, and continue to show your support for this inspirational little

boy, after the operation on March 27th by following us and Seths parents on Facebook, Twitter and

Instagram. And be sure to keep an eye on us here at The Bubble Foundation as well for updates on

Seth’s progress, and our continued effort to make sure that one day every child born with SCID

survives.

25 years of Bone Marrow Transplantation in Newcastle

Come and join us in celebrating the unit’s milestone at our ‘Patient and Family Day’ on Saturday 9th May at the Great North Museum, Newcastle upon Tyne

09:00 – 12:00pm, followed by a buffet lunch.

Activities include presentations about the past, present and future, including advances in treatments and diagnostics followed by some presentations from past patients.

There’ll be some children’s entertainment and activities and a chance to meet some of the team behind the Unit’s success over the years and those who have helped make it the success that it is.

Email roz.gale@ncl.ac.uk to register your attendance or call 0191 2825234 for further information.

We look forward to seeing you there!

Variety Showcase – 16 to 18th October 2014

The 2nd Variety Showcase at the Little Theatre in Gateshead, Thursday 16th October to Saturday 18th October 2014 kindly organised by the Rotary Club of Blaydon, Ryton and Whickham. This year the Rotary club will be supporting the Bubble Foundation. Come along and see the children’s performances!  

19:00pm – 21:30pm 

Adults £5

Concessions £3.50

To purchase tickets please call 07914 684323.

Brian McFadden’s Golf Rocks

Hosted by Brian McFadden, Golf Rocks is an exclusive and unique event that will combine music and golf at one of the country’s top venues.
The day will start with breakfast and registration. A shotgun start will then begin play and guests will enjoy on-course hospitality and music as they compete.

Brian will be joined by Ronan Keating, Keith Duffy and Kian Egan who will captain the celebrity teams and will battle it out against each other to win The Bubble Foundation Cup. In addition, they will also compete in the overall competition for a variety of prizes. After golf, there will be a three course dinner and prize ceremony. Guests will also have the opportunity to bid on fantastic auction prizes all in aid of The Bubble Foundation.

Post dinner, the party begins. Guests will have VIP entry to the marquee where there will be specialised food and drinks stalls courtesy of our event partners. You can also purchase tickets just for the evening party. The night will start with a performance from Brian McFadden and some special surprise guests followed by Vogue McFadden and other guest DJs who will make sure the party rocks till late.

The £1,500 + VAT package includes:
• Breakfast
• Amazing goody bags supplied by Cleveland Srixon and Galvin Green
• 18 holes on the Colt and Alison courses
• On-course hospitality
• Individual and team prizes
• Three course dinner
• Auction in aid of The Bubble Foundation
• Entry to party including performances by Brian McFadden, Vogue McFadden and special guests

Cost per team of four: £1,500 + VAT – includes four Gold tickets to the evening event with food and drink in the marquee
Gold Tickets : £99 – includes all food and drink in the marquee
Silver Tickets: £29.99 – food and drink at own cost.

Tickets can be purchased online at http://shop.yourgolftravel.com/products/ygt-golf-rocks

For further information please contact the team at events@yourgolftravel.com.

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