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One Direction’s Tour Manager

 

One Directions tour manager Paul Higgins now follows us on Twitter! Thanks for your support Paul!

The Bloggers Circle Takeover

Image credit to FoodBelfast.com – @FoodBelfast

The restaurant pimp also known as  Kevin McGuiness is a restaurant review blogger based in Northern Ireland. His son Thomas was 5 months old when he was admitted to the Bubble and this is his story as told by Kevin  :-

In December 2011 after a lengthy period in the Royal Hospital, Belfast, we discovered that our 5 month old son, Thomas, was born without a fully functioning immune system which is a life threatening condition whereby his body could not fight fungal or bacterial infection. Whilst in intensive care, we were informed by the consultants that the only cure for his condition was a bone marrow transplant and one of only two hospitals in the UK and Ireland who could facilitate this procedure, was at the Bubble Unit at the Great North Children’s Hospital  in Newcastle upon Tyne. So with this news, less than 24 hours later and 5 days before Christmas, we flew by Air Ambulance to England.

We were not only trying to come to terms with the fact that our son was fighting for his life , we now had the worry of finding somewhere to live for the foreseeable future. Here we were in a strange city with no family or friends around us and this is when the Bubble Foundation offered us support.

The Bubble Foundation provided accommodation in a block of flats which are specifically to house the parents of children who are in the Bubble and also transport to and from the hospital, with no expense to the parents. The standard transplant can take between 3 months  to a year and this support provides a safety net for parents at such a stressful and financially draining time and is very much appreciated. They provide toys, medical equipment and also fund essential research which will enable children like Thomas, to go forward and lead normal, healthy lives.

In total we spent four tough months in Newcastle. Thomas was in isolation during this time, in order to reduce any further infection and we as parents weren’t able to kiss him but only watch as he went through the various stages of the treatment. After 46 days Thomas was allowed to leave his Bubble, the transplant went as well as the doctors could have wanted and Thomas continues to thrive.

The Bubble Foundation recognises that this hard time both emotionally and physically and the services which they provide are invaluable.

To show my appreciation I am organising a fundraising event during Belfast Restaurant  Week with myself and John from FoodBelfast taking over the Circle at Deane’s for two nights in October. On the first night we will be cooking a four course meal and will be joined by  Michael Deane and on the second night we will be joined by Barry Smyth. Both of these chefs have held Michelin stars for their cooking.

Both nights were fully booked and the total raised was £5454.

 

Barclays Contact Centre

On 12/09/12 Barclays contact centre in Liverpool completed a charity day in aid of The Bubble Foundation.

On the day all staff paid a pound to dress down, we had a tea trolley going round with cakes people made (and some we bought), we had a raffle of prizes donated for the day consisting of, signed Steven Gerrard Liverpool shirt, signed Everton ball, signed Ricky Hatton poster, Signed Paul McCartney CD, 2x ticket for Liverpool vs Everton, 2x tickets for Royal Court theatre and a number of other smaller prizes all donated by local businesses.

Everyone had a great day and we raise a fantastic £1250.24 for the Bubble Foundation. Barclays through their matched funding scheme has doubled that money so we have made a donation to the Bubble Foundation of £2500.48.

A Message From Our Patrons

“I was so thrilled to be asked to be part of the “Bubble Appeal”.  I can remember the first time I became aware of the amazing work they do when Denise Robertson mentioned it on This Morning, long before I joined the show.  Along with the show’s viewers, I was touched by the film that Denise made and followed with great interest the advances that were being made. Now, all these years later, I’m proud to be able to put my name and voice alongside Denise in my support of the team.  I’ve met the dedicated staff involved and I’ve met some of the children whose lives they have saved.
What a wonderful success story to be a part of!”

-Phillip Schofield

 

 

 

“I became interested in the Bubble when I learned that it was curing babies and children from Ireland. Now, children come to the Newcastle Bubble from all over Europe.
It is an international success story and I’m proud to be part of it.”

-Eamonn Holmes

 

 

 

“I am absolutely delighted to have the privilege of being one of the Bubble Foundations patrons. I recently had the opportunity to visit the Bubble ward in the RVI in Newcastle upon Tyne and was able not only to speak with the parents of the children being helped in the hospital but also see the amazing work that the staff are doing and the advancements that the foundation have made in medical science, which not only helps those affected by defective immune systems but also how it pioneers the way forward in research into the human immune system.”

-Alexander Millar  Artist

Craig Turnbull Runs A Marathon For His Cousin.

“Im running for James Turnbull.

James is my cousin and you couldn’t meet a cooler kid. Sadly he was recently diagnosed with Chronic granulomatous disease.

Chronic granulomatous disease is an inherited disorder in which immune system cells do not function properly. This leads to ongoing and severe infection.

The only cure for chronic granulomatous disease is chemotherapy and a bone marrow transplant; this is where the Bubble Foundation comes in.

The Bubble Foundation needs all the funds they can get in order to provide the best service possible for kids like James.

I have decided to run this half marathon to raise as much money as possible for this amazing charity. I have given myself 4 weeks to train, because im crazy like that.”

  

He finished the race in 1:57:30. His final total is £1310!!

“My final total was £1320!! which I am very happy about and im sure the bubble foundation will be able to do great things with it.”

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